As you probably know by now, Diabetes Hands Foundation will host our 3rd MasterLab event during Friends for Life, on Wednesday, July 6th, 2016 in Orlando, FL. Our focus remains informing, educating, inspiring and empowering diabetes advocates so that the patient voice is heard by policymakers and industry, to create positive change for people with diabetes.
MasterLab is a day for diabetes advocates and stakeholders to come together to collaborate and learn about how to become more influential and accelerate and amplify their efforts to improving the lives of people living with diabetes.
The agenda is packed with amazing organizations and speakers that will teach us how to become better advocates, online and offline, to make a positive difference in our own lives and the lives of others. MasterLab will last from 8am to 5pm and will encompass a diverse background of advocates and experts.
- “Building Collaboration and Sustainability in Programs for Nutrition and Access, in Underserved Neighborhoods”. We will learn from Roniece Weaver, Executive Director of Hebni Nutrition Consultants, Registered Dietician and author, about how she has brought health messages to underserved populations in Orlando, in a different delivery mode. This is a great example of the opportunity that might exist in your community, to work offline, make a difference and support local, smaller organizations.
- “Understanding your Legal Rights to Stop Discrimination in the Workplace”. John Griffin from the National Diabetes Volunteer Leadership Council (NDVLC), will show us, with their experience and expertise in the field of diabetes advocacy, what constitutes discrimination in the workplace and at school.
- “What Clinical Research Means to You – Educating and Empowering People to Make Informed Decisions Regarding Participation in Clinical Research”. Ellyn Getz, Senior Manager of Development, Fundraising, and Events at The Center for Information and Study on Clinical Research Participation (CISCRP) — a nonprofit organization dedicated to engaging the public and patients as partners in the clinical research process, will talk about the critical need for general education about the clinical research process, including the risks, benefits, and rights of participants. The purpose of the session What Clinical Research Means to You is to provide information about clinical research as a potential treatment option and to empower individuals to make informed decisions about their health.
- “What are you going to do about it? – Raising Awareness of the Number One Cause of Death, Disability, and Rising Health Care Costs: Chronic Disease” Jay Keese, Partnership to Fight Chronic Disease (PFCD). Jay Keese is the founding Principal of Capitol Advocates, a Washington, DC based government relations firm. With over two decades of experience as a public policy professional, Jay has focused much of his career on healthcare issues and advocacy campaigns. Currently Jay helps manage several advocacy coalitions, including the Partnership to Fight Chronic Disease (PFCD), a broad coalition of patient, provider, community, business and labor groups, and health policy experts, committed to policy solutions to improve health outcomes and control costs by slowing the spread of preventable chronic disease. Jay will talk about PFCD’s mission and goals, spend some time about why patient advocacy works and its importance to the process. He’ll also go into some specifics about the work they’ve done to get CMS to begin to scale the NDPP in Medicare— much of which involved patient advocates and groups like the YMCA.
- “AADE and the Diabetes Advocates – Evolving to Work Synergistically, and an Update on AADE’s Federal and State Legislative Efforts” Hope Warshaw, 2016 President, American Association of Diabetes Educators and Kurt Anderson, AADE’s Director of Federal and State Advocacy. AADE, the membership association for diabetes educators, has increasingly engaged with members of the diabetes online community to support each group’s efforts. Increasingly there is synergy and integration on efforts that support both communities and people touched by diabetes. AADE will share their state and federal legislative priorities and why legislation that affects diabetes educators and diabetes education also impacts people with diabetes. Lastly, this session will explain why states are playing an increasingly important role in driving the political and regulatory process.
- “Diabetes and Mental Health: Advocating for Others While Taking Care of Yourself” Dr. Mark Heyman, Center for Diabetes and Mental Health. Mark Heyman is a diabetes psychologist, person with type 1 diabetes, and Founder and Director of the Center for Diabetes and Mental Health. We will learn how can advocates communicate the psycho-social and emotional challenges of diabetes in their advocacy work and take care of themselves in the process.
Registered participants in CWD’s Friends for Life conference are welcome to join MasterLab as part of their experience, at no additional cost. Separate registration for the MasterLab is required and there is limited space available, so don’t delay! Email Jimmy@diabeteshf.org for a complimentary code to use at MasterLab registration. We hope to see you there!
If you don’t have a background in diabetes advocacy, that’s ok. No previous experience needed!